There is so much to know and learn about Hemophilia.
At HemoHelper we are compiling an ongoing list of helpful resources, and will be adding to it as we go along. Leave a comment if you know of other sites you’d like to see added to the list.
Helpful Websites:
- https://www.hemophilia.org/
- http://www.cdc.gov/ncbddd/hemophilia/
- http://www.hemophiliafed.org/
- http://www.wfh.org/
- http://www.hemophiliavillage.com/
- http://www.hemaware.org
- http://www.victoryforwomen.org/
- http://www.saveonelife.net
- http://www.rbdd.org/014/
- http://globalgenes.org/
- http://rmhbda.org/html/financialAssistance.html
- http://www.gatewayhemophilia.org/our-programs/
Events:
- National Hemophilia Foundation (NHF) Annual Meeting
- Hemophilia Federation of America Symposium
- Parents Empowering Parents Conference (Check your state for program details)
- NHF Inhibitor Summits
- World Hemophilia Day: April 17th (annually)
- Annual camps, walks, and other activities (Check your state hemophilia chapter for details)
- World Congress (every 4 years)
Scholarship Opportunities for People with Bleeding Disorders:
- Hemophilia Scholarship website
- HFA’s List
- NHF’s List
- LA Kelley Communications
- Needy Meds
- Factor One Source Pharmacy Scholarship Program
- Emergent B Mores Scholarship
Other Blogs:
- http://www.sweetaffliction.com/
- http://www.factorfacts.com/
- http://prophyholic.blogspot.com/
- http://hemophiliaisforgirls.blogspot.com/
- http://bubblewrappedbirth.blogspot.com/