Hosted by: Holly Olsen
Guest: Preeta Varkey
In part 2 of this HemoStories episode, Holly continues interviewing Preeta Varkey, the mother of an 8 year old son with severe hemophilia and inhibitors. They are Indian expatriates living in Bahrain. Preeta shares the vulnerable and difficult lifestyle of living outside of her native country while parenting a child with a complex medical condition.
The discussion covers the cost of treating Preeta’s son, the availability of factor, how they have chosen to educate her son outside of public schooling, and Preeta’s hopes for the future.
“Health should be the first priority [of a country] for the citizens… I feel that affordable treatment should be the top most priority today and it should be made available to all, no matter which country you belong to.”
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Special thanks to Mason Morris from SLC, UT for writing the theme song, “Just Smile,” which was written as an optimistic reminder that there is hope for a cure and a bright future in the hemophilia world.